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Photo by Fred Rosenberg "To experience the support, kindness and compassion that I received in the hospice grief support group, after the passing of my beloved husband, was a spiritual experience. Without it I would not be where I am now. Thank you, Hospice."
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LinksThere are many excellent resources available on the Internet dealing with all aspects of hospice palliative care. The following sites give an overview of the structure on hospice palliative care in Canada as well as good general information. Canadian Hospice and Palliative Care Association is the national association which provides leadership in hospice palliative care in Canada. CHPCA offers leadership in the pursuit of excellence in care for persons approaching death so that the burdens of suffering, loneliness and grief are lessened British Columbia Hospice and Palliative Care Association hospice is an umbrella organization whose mission is to provide a leadership role for its member organizations and individuals to ensure quality of care for British Columbians faced with a life-threatening illness, death and bereavement. Hospice Foundation of America provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the health care system and the role of hospice within it. Hospice Net provides information and support to patients and families facing life-threatening illnesses. Hospice Net is an independent, nonprofit organization working exclusively through the Internet. This site has many brief, articles about hospice palliative care directed to the patient and to the caregiver dealing with end of life issues, grief and bereavement. The Canadian Virtual Hospice is an interactive network for people dealing with life-threatening illness and loss. Patients, friends, volunteers and medical professionals can use this interactive site to explore end of life issues with peers. Growth House. Hospice Advocacy Organization, located in the San Franciso Bay area, whose influence extends throughout North America. International Association for Hospice & Palliative Care. Information on Hospice Issues worldwide. Hospice Hot Links. Links to sites of Hospice-related organizations throughout the Province of British Columbia. Legacies Inc. is committed to providing free information that is immediately useful to people involved in various hospice program areas. The common feature of all of the projects is that they aim to help individuals, families and communities enrich their knowledge and skills so they can all be more helpful to each other in times of great joy and in times of great need. This site has many complete books including titles on Home care, hospice palliative care, health care leadership, community development, adult learning, Canada 150 (a 20-year project to encourage Canadians to record their life stories and/or families histories for Canada's 150th birthday in 2017), and renovating homes to make them accessible and more comfortable for long-term care. The Regional Palliative Care Program from Edmonton Alberta has good information about many aspects of hospice palliative care Hospice Foundation provides as excellent database on most hospice palliative care topics. Family hospice care: Pre-planning and care guide (16th anniversary edition - 2002) This 350-page book looks at all aspects of meeting the physical, emotional, spiritual and information needs of people nearing the end of life including aspects of pain and symptom control, communication, legal and financial concerns, funeral preparation and what to do after someone has died. An advance directive documents your wishes for future health care if the time comes when you are unable to make or communicate those decisions yourself. Your advance directive will tell your legally- appointed decision maker – Committee, Representative, or Temporary Substitute Decision Maker, or in an emergency situation, a health care provider – what health care you want. Excerpts from the book Handbook
for Mortals:
• Enduring And Changing • Finding Meaning • Helping Family and Loved Ones • Talking With Your Doctor • Managing Other Symptoms • Learning About Specific Illnesses • Planning Ahead (Advance Care Planning) • Forgoing Medical Treatment • Tube Feeding (Fluids and Food) • Decisions About Resuscitation (CPR) • Decisions About Ventilation • Hastening Death • Coping With Events Near Death • Questions About Funerals • The Dying of Children • Dying Suddenly • Enduring Grief and Loss Comprehensive On Line Publications made available through the Living Lessons Program of the Canadian Hospice Palliative Care Association. Available resources for hospice palliative care community include:
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